Showing posts with label music. Show all posts
Showing posts with label music. Show all posts

Wednesday, April 1, 2009

Palliative Care Grand Rounds, Volume 1, Issue 3


Welcome to volume one, issue 3 of Palliative Care Grand Rounds!

Here you will find an overview of what's been happening in the cyberworld regarding palliative care, death, dying, end-of-life care, and all sorts of related topics for the past month. 

Entries in this series are rotating throughout palliative-care-oriented blogs and are hosted on the first Wednesday of each month. Next month's series will be hosted by Thaddeus Pope at Medical Futility on May 6th. 

There is a lot here, so if you want to read a bit at a time and come back later to read some more, that might be a good way to approach it. I do realize it looks overwhelming :)

That said, let's jump right in ... 

This month, a study was released in JAMA telling us that terminal cancer patients who are self-defined as religious are nearly three times as likely to seek life-sustaining measures near the end, and are also less likely to prepare for death—in terms of advance directives, living wills, healthcare advocates.

Also this month, Washington's Initiative 1000 went into law, legalizing physician assisted suicide. One stipulation of the law is that hospitals and individual practitioners can choose to opt out of the legislation. The has the potential to cause massive confusion. As a Washington-based nurse practitioner, risaden of Risa's Pieces, has an excellent post on his thoughts on this law, what he has encountered related to it, and how it compares to Oregon's law.  

Taking a harder look at the risks of skiing without a helmet, and the signs of serious head trauma in the wake of Natasha Richardson's death—a sad reminder that death by falling is the third most common cause of accidental death

60-Second Psych in Scientific American takes a look at whether the suicide of Nicholas Hughes, the son of Sylvia Plath and Ted Hughes, was due to hereditary causes. Children of mother's who kill themselves are more likely to commit suicide ... but is that correlation or genetics?



If the Rapture occurred, what would happen to your bank account? That's right, the Christian Rapture. Well, Mark Head thinks that in the event of the Rapture, in the midst of God's eternal glory, you will still be worrying about what is happening to your financials down on earth, So, for a $40 fee, he has a service that sets up an email that can be sent to your relatives with your bank account information. (And you can totally trust Mr. Head with your financial information.) "Christians on call" for the site log on to it to keep it going. If no one logs on for three days, it is assumed Rapture has taken place, and the emails are sent out. I guess you'd want to pick your most heathen-y relatives, just to ensure they're left behind to receive the email. How do you start that conversation?

This piece is a real doozy. How you go from normal life and a simple spinout in snowy conditions to freezing to death, or nearly freezing to death. And what it's like to freeze to death. Fascinating. Well-written. From Outside magazine online. 

A story about taking care of Sean, a former Fortune 500 company worker with early onset Alzheimer's, from the blog Confessions of a Young Looking Social Worker

A geropsychiatrist writes about two old goats—one figurative and one literal—both using the same meds to good purpose. Funny!

A touching piece that comes very close to my interests. A medical librarian writes about her mother-in-law's good death from cancer—thanks largely to the help of good hospice care—and the bittersweet satisfaction that brought the family. 

The blog Palliative Care Success discusses a NEJM article that shows high-spending regions of the country are more likely to recommend hospitalization for an 85-year-old patient with an exacerbation of end-stage congestive heart failure. They were also three times as likely to admit this patient to intensive care, and 30% less likely to discuss palliative care with the patient and family. The post suggests Advanced Palliative Care Organizations (APCOs) can help reduce the number of people dying in hospitals and reduce the number of days patients spend at the hospital near the end, but APCOs are limited in how many physicians and other professionals they are drawing. 



The relationship between palliative care and the church, the spiritual role of palliative care ... but also the palliative care needed by a dying church (in this particular community) are all addressed in this beautiful blog entry written by a former pastor and Tampa-based hospice worker. 


Fran Johns, one of my favorite bloggers, has a beautiful piece on the therapeutic and restorative qualities of pulling Oxalis. Fran is part of the slow-blogging movement and does not update often, but when she does, it is always something amazing. Be sure to bookmark her site. 

At The Mom and Me Journals dot Net, Gail Rae writes about donating some of her mother's items to a garage sale. The need to de-clutter leads her to rid the place of her deceased mother's items as if they are just things, but one special piece, a tiara, needs an important home. 

Dethmama finds welcome relief from her work as a hospice nurse in the form of a new puppy named Olive. She has also posted a long-awaited sequel to a great story, Hospice Hitwoman and the C.Y.A., about a family who is anxious to see their loved on pass away, before the right time even. 

At the Pallimed blog, Dr. Drew Rosielle discusses a study that shows most people do not understand the actual details of resuscitation, and many would choose to not have chest compressions, shocks IVs through the groin, even though those are sometimes regular parts of resuscitation. Dr. Rosielle also has an excellent post on JAMA's series on palliative care of latinos

Pride and Prejudice and Zombies: Seth Grahame-Smith has reworked Jane Austen's Pride and Prejudice to include zombie battles. You can find a fantastic (in every sense of the word) excerpt here

If you want some death at the movies, check out Sunshine Cleaning, an irreverent and touching comedy about two sisters who open an industrial cleaning business—specifically cleaning up after dead people. The film stars Emily Blunt, Amy Adams, and Alan Arkin

Is it ethical for a wife to use a deceased spouse's sperm for artificial insemination? The Health Monitor at Radiography Schools takes up this issue and contrasts it with other sperm-donor controversies of late.

Is there such a thing as a style for your illness? Dana Jennings writes about getting a buzz cut to develop a tough, "Prison Break"-esque style for his prostate cancer treatent. For him, the haircut is a "visible bulwark against the tide of emasculating side effects caused by the treatment of prostate cancer."

Thanks to all who sent in suggestions! I'm sure there is even more out there I couldn't get to. And if you're interested, here's where you can find issues 1 and 2

Thursday, March 12, 2009

Solace

Much of our communication is nonverbal.

I'm not going to throw out any percents here ... but I don't think anyone would argue that a lot of times, the way we get a message from Point A to Point B has nothing to do with language.

This film, which was forwarded to me by filmmaker Bill Kersey, is a poignant example of just how powerful silence can be.

The film's official description: " The story of a man, his grief and his guitar is told through music and a lyrical montage of still images."

Both sweet and moving, it's only three minutes long, and definitely worth your time.

Monday, January 26, 2009

Whisper House

Musician Duncan Sheik has written a new rock opera called Whisper House. Interviewed recently on NPR's All Things Considered, Sheik will release the musical as a solo album tomorrow, January 27th.

Whisper House follows a young boy during WWII whose father has been shot down by a Japanese pilot. The boy is sent to live with his spinster aunt in a haunted lighthouse in Maine.

Throughout the musical, ghosts sing to the "living" characters and the audience and function as a sort of Greek chorus, according to Sheik. In Greek theater, the chorus would often help narrate the play, but also speak the feelings and thoughts that the characters themselves were afraid to name. Making ghosts into the chorus seems to fit the Western idea that ghosts are more connected to the spiritual and somehow more know about emotions and about the unfolding of events than the rest of us do.

The video for one of the songs, "Earthbound Starlight," is at this link (embedding is disabled.) It's a pretty cool video.


And here's a bad-quality video of another song, "It's Better To Be Dead":



Sheik also wrote the hit musical Spring Awakening.

Saturday, January 10, 2009

Mortuary Band

Today on Weekend America, I heard this story about a mortuary band. 

In San Francisco's Chinatown, they follow behind funeral processions and play songs like "Amazing Grace" and "Onward Christian Soldiers" on tuba and trumpet. The specific purpose to Chinese funerals is spiritual: The music helps keep the spirit close to the body until it can be buried. 

But the band also draws the attention of the entire community to the funeral. It announces the death. 

When I first heard this piece, I thought the concept was too bizarre to be of much value, but the more I think about it, the more I like it. I'm a big fan of public grieving. I think too much of our grief is dealt with behind closed doors, singularly or within a single family. This pulls it out into the open ... but in a beautiful way. 

One of the band members, Cindy Collins, says in the piece, "Even though it comes from a sad moment, it's this triumphant moment for the person who's going on and we're sharing that with the community. What gets better than that?" 

Wednesday, October 22, 2008

Parallel Worlds, Parallel Lives



NOVA aired an excellent program last night, focusing on the story of Mark Oliver Everett, frontman for the indie band EELS. Mark lost his father when he was just 18, and has only recently, now as a man in his 40s, began to come to terms with his father's death.

Mark's father was an academic. A devout atheist. A bit of an eccentric. Somewhat distant from his wife and children. And a brilliant theoretic physicist who invented the theory of parallel universes.

Hugh Everett III first published his theory in a 1957 dissertation. In very simple terms (simple because I am not a scientist) he says that although we only see one outcome from any given event, there are an infinite possibility of outcomes occurring in different, parallel universes. Of course, we know now, his idea is widely popular in mainstream science fiction (Lost, Star Trek, etc.). But his work only began to receive any credit from the scientific community in the late 70s. And Everett died in 82.

The work continues to gain in popularity. Now, as the oldest living son of a man with a legacy of mysterious genius, Mark Everett finds himself in the awkward role of playing caretaker to his father's memory. The NOVA special traced his path to document what he could about his father though surviving family photos, tapes, records, etc., and it recorded his thoughts serving as this strange sort of ambassador for his deceased dad.

In a way, we could say he is having the opposite experience of Christopher Buckley. Mark Everett is being trapped and confined by his father's death, not liberated.

Watch the program online here ... but only for one week. There are also background materials, including writing from Mark Everett and Hugh Everett's original dissertation here.

Tuesday, August 26, 2008

Does Anyone Want to Die in a Hospital?

Lyrics to a new(ish) Conor Oberst song "I don't want to die (in the hospital)"

I don't want to die in the hospital
I don't want to die in the hospital
I don't want to die in the hospital
You gotta take me back outside

I don't want to hear all these factory sounds
Looking like a girl in a sleeping gown
I don't want to die in the hospital
You gotta take me back outside

Can you make a sound to distract the nurse
Before I take a ride in the long black hearse
I don't want to die in the hospital
You gotta take me back outside

Help me get my boots on
Help me get my boots on
Help me get my boots back on
Help me get my boots on
Help me get my boots on
Help me get my boots back on
I gotta go, go, go
Cause I don't have long

I don't give a damn what the doctors say
I ain't gonna spend another lonesome day
I don't want to die in the hospital
You gotta take me back outside

And they don't let you smoke and you can't get drunk
All there is to watch are these soap operas
I don't want to die in the hospital
You gotta take me back outside

Can you get this tube out of my arm
Morphine in my blood like a slow sad song
I don't want to die in the hospital
You gotta take me back outside

Help me get my boots on
Help me get my boots on
Help me get my boots back on
Help me get my boots on
Help me get my boots on
Help me get my boots back on
I gotta go, go, go
Cause I don't have long

Is there still a world out my windowsill
All there ever was I remember still
I don't want to die in this hospital
You gotta take me back outside

Don't know when it's day or when it's night
All I ever see are fluorescent lights
I don't want to die in this hospital
You gotta take me back outside

They give me all these flowers and these big balloons
But I don't wanna stay in this little room
I don't want to die in this hospital
I don't want to die

Are the stars still in the sky?
Is that fat moon on the rise?
Feel the earth against my feet
As the cold wind calls for me

I don't want to die in this hospital
I don't want to die in this hospital
No I ain't gonna die in this hospital
You gonna take me back outside

Yeah I ain't gonna die in this hospital
No I ain't gonna die in this hospital
No I ain't gonna die in this hospital
You gonna take me back outside

The Omaha, NE, singer/songwriter has frequently returned to the subject of death and mortality in his music, but in this particular song, he hits on a theme that will resonate for many in our modern world. When asked how they want to die, I would guess, most people would say things like—surrounded by friends and family, in their own bed, comfortable, at home, with a view of trees, etc.

Some may genuinely prefer the security of knowing they are surrounded by medical professionals, in a sterile environment, to the end ... but according to some research, more than half of patients with life-limiting, chronic illness die in hospitals, even though up to 70% of Americans express a wish to die at home. (This from a study done at Sewanee: the University of the South.)

This disconnect is startling and sad. And as much as some folks find Oberst petulant and arrogant, I like his emotionally charged, heavily vibrato style. And for me, this song says something eloquent and beautiful about a problem many of us will face and more of us should be going into with our eyes open.